Jackson heart study statistical computing, specimen inventory and data & materials information request service

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1. Resource Description

   JHS Statistical Computing Request This is the mechanism used by JHS to solicit and track all data requests for reports, publications, presentations and for ancillary studies. Using this mechanism, investigators who plan to conduct data analysis outside the JHS can obtain a customized dataset based on the requested need. Requests for JHS data for publication require approval of a JHS Manuscript Proposal. Requests to collect additional data (i.e., on JHS participants) require an approved JHS Ancillary Study. Please note: ANY data request related to an Ancillary Study or Manuscript Proposal will not be reviewed until approval from the Ancillary Study Sub-Committee and/or the Presentations and Publications Sub-Committee is confirmed. To submit a request for data, you must complete an online Statistical Computing Request. If this is your first time to this website, you must first register. Please complete the registration form below; once registration has been completed, login to the Statistical Computing Request website and proceed with the data request. All requests will be reviewed by the JHS Data Management Unit and will generally be reviewed within two weeks of the date of submission. Due to the complexity to a number of data requests, please give us as much notice (i.e., preferred deadline) to when the data are needed. An automated response e-mail from the data request system will be sent to the e-mail address you provide when your request has been successfully submitted. After review, you may be contacted via telephone or email to clarify questions about or details of your request. JHS Specimen Inventory This inventory provides a summary of the availability of biological materials collected and stored on the JHS Cohort. This summary is currently based on biological materials collected on JHS Visit 1. Also, this summary is dynamic due to requests for ancillary studies. JHS Data and Materials Sharing Agreement This agreement protects the confidentiality and privacy of JHS participants and their families, investigators granted access to the biological materials, genetic analysis data, and clinical data collected by the JHS. These data and materials have been stripped of all personal identifiers. Failure to comply with this Distribution Agreement could result in denial of further access to JHS samples and data. Violation of the confidentiality requirements of this agreement is considered a breach of confidentiality and may leave requesting investigators liable to legal action on the part of JHS participants, their families, or the United States Government.

2. Contact

   Taylor, Jr., Herman A.

3. Service Provided by

   Jackson Heart Study

4. Technique performed by

   Jackson Heart Study

5. Related Publication or Documentation

   The Jackson Heart Study: An Overview

6. Website(s)

   https://www.jacksonheartstudy.org/jhsinfo/ForResearchers/DataAccess/tabid/134/Default.aspx